Granulosa Cell Tumour Research Foundation

Some recent items of interest concerning GCT

4 October 2019 — Patients Die While Docs on Hold

This is an article about problems faced by doctors trying to get insurance companies to pay for treatments. It focuses on one situation, a woman with GCT who wanted to join a phase II clinical trial. The author is Dr. Barbara Goff, who spoke recently at the OCRA national meeting as part of the rare ovarian cancers panel.


3 September 2019 — Clinical trial for GCT begins recruitment of patients

This is a study of a drug called onapristone extended-release (ER) being conducted by Memorial Sloan Kettering (MSKCC). If you are interested review the information available for trial #NCT03909152 in the NCI clinical trials database entry. Note that there is a crucial inclusion criteria that your tumour must have PR expression ≥1% by IHC on archival tissue taken within the prior 3 years. (Your clinician should have access to that information if you do not have your pathology results).

To discuss potentially enrolling in the trial, contact MSKCC at 646-497-9055 about making an appointment.


9 May 2019 — Women’s Health: After Beating Ovarian Cancer At 30, The Real Battle Began


24 April 2019 — Andalusia Star-Times: Survivor of rare cancers now pursuing healthcare career


6 March 2019 — Kansas City Star: Though fighting cancer, Blue Valley High teen wanted to be in school. A robot helped


19 September 2018 — The Ridgefield Press: Ovarian Cancer Survivor Shares Her Story: September is National Ovarian Cancer Awareness Month


26 June 2018 — ESPN: Remembering Alex Wilcox and a life spent loving softball

Alex was diagnosed with juvenile GCT at 15 years of age


2 May 2018 — Rapid City Journal: Benefit to be held Friday for Hannah McCarthy

12-year old Hannah was diagnosed with juvenile GCT


December 2017 — InRegister: Women with a cause – Terri Gerace