Some recent items of interest concerning GCT
April 2023 — Findings from the Granulosa Cell Tumor (GCT) Survivor Sisters Facebook group
A pair of articles from the journal Cancer highlighting research based on input from our GCT women!
Cancer-2023-Editorial-Rare-disease-research-powered-by-empowered-patients-solving-the-zebra-puzzle-through-social-media Cancer-2023-White-How-social-media-can-help-to-understand-treatment-experiences-of-survivors-of-rare-cancers-19 November 2019 — Closing in on a potential treatment for GCT
An article about our most-recently funded research project at the University of Alberta.
4 October 2019 — Patients Die While Docs on Hold
This is an article about problems faced by doctors trying to get insurance companies to pay for treatments. It focuses on one situation, a woman with GCT who wanted to join a phase II clinical trial. The author is Dr. Barbara Goff, who spoke recently at the OCRA national meeting as part of the rare ovarian cancers panel.
3 September 2019 — Clinical trial for GCT begins recruitment of patients
This is a study of a drug called onapristone extended-release (ER) being conducted by Memorial Sloan Kettering (MSKCC). If you are interested review the information available for trial #NCT03909152 in the NCI clinical trials database entry. Note that there is a crucial inclusion criteria that your tumour must have PR expression ≥1% by IHC on archival tissue taken within the prior 3 years. (Your clinician should have access to that information if you do not have your pathology results).
To discuss potentially enrolling in the trial, contact MSKCC at 646-497-9055 about making an appointment.
9 May 2019 — Women’s Health: After Beating Ovarian Cancer At 30, The Real Battle Began
24 April 2019 — Andalusia Star-Times: Survivor of rare cancers now pursuing healthcare career
6 March 2019 — Kansas City Star: Though fighting cancer, Blue Valley High teen wanted to be in school. A robot helped
19 September 2018 — The Ridgefield Press: Ovarian Cancer Survivor Shares Her Story: September is National Ovarian Cancer Awareness Month
26 June 2018 — ESPN: Remembering Alex Wilcox and a life spent loving softball
Alex was diagnosed with juvenile GCT at 15 years of age
2 May 2018 — Rapid City Journal: Benefit to be held Friday for Hannah McCarthy
12-year old Hannah was diagnosed with juvenile GCT
December 2017 — InRegister: Women with a cause – Terri Gerace
